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Learning Disability Pathfinder

Project impact

Empower people with learning disabilities and their carers to interact and share information with health and social care services in a way that reduces unnecessary repetition and ultimately leads to improved outcomes.

Enables people with learning disabilities to share information that is important to them to aid effective interaction and engagement by health and social care practitioners.

DHI is collaborating with the Fraser of Allander Institute, SCLD and PAMIS to explore how the PAMIS digital passport could integrate with future NHS and social care digital records, including the National Digital Platform.

The Digital Health & Care Innovation Centre are working with the Fraser of Allander Institute, SCLD (Scottish Commission for People with Learning Disabilities) and PAMIS (a third sector organisation that solely supports children, young people and adults with a profound learning and multiple disabilities and their families to lead healthy, valued and inclusive lives) on a short project to better understand how the PAMIS digital passport could integrate with cornerstone NHS and social care electronic records in the near future. Particularly, we are focussing on potential integration with the National Digital Platform (NDP) currently being developed by NHS Education for Scotland (NES). The NDP represents the near future of record keeping in Scotland.  

Summary

DHI is collaborating with the Fraser of Allander Institute, SCLD and PAMIS to explore how the PAMIS digital passport could integrate with future NHS and social care digital records, including the National Digital Platform.

To support and inform frontline improvements which will enhance lives by empowering people with learning disabilities and their carers to interact and share information with health and social care services in a way that reduces unnecessary repetition and ensures they have access to, and greater control over, their own health and care data. 

Impact & value

Image by Jacob Padilla

This initial design phase of work consisted of current & future state mapping workshops, producing a wireframe prototype building from the existing PAMIS passport to demonstrate the Art of the Possible. The final project report includes a proposal for continuation/next steps, including development of a functional prototype in a second phase.

Progress to date

Image by Jacob Padilla

Next steps

Image by Jacob Padilla

Partners

PAMIS
Fraser of Allander Institute
Scottish Commission for People with Learning Disabilities

Project team

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